INDIANAPOLIS -- After a local family's newborn daughter died just one month into her life, they are pushing for legislation that could keep it from happening to another family.
It's been nearly three months since Baby Mya left. Her parents keep her memory alive in her their home.
"We still have her bed up," Mary Rasor said. "I can't take it down. I'm not ready to."
Also in the baby's room -- an unfinished baby book, her heartbeat recorded and stored on a flash drive, and baby blankets that still smell like Mya.
The baby died in February due to complications from intestinal malrotation. The deformity causes the intestines to twist, leading to a blockage.
At first, Rasor thought her baby had colick. But the next morning, she was rushed to a children's hospital.
"Her abdomen was swollen," Rasor said. "You could see all the veins in her belly."
On Feb. 15, Mya's life ended.
I wanted to be the one that held her when she took her last breath.
Wishing she would've known to get treatment sooner, Mary is turning her heartbreak into action.
"I'm finding that there's so many people that have been affected by this," Rasor said.
She has connected with survivors around the world, all of them pushing for greater awareness of intestinal malrotation. Rasor is calling on the State of Indiana to require hospitals inform new parents of the signs and symptoms, and offer testing for the abnormality. Intestinal malrotation affects roughly one in 500 newborns.
"If we had known that that could've been an issue, she would've been to the hospital long before," Rasor said.
None of this will break back Mya, but Rasor hopes it may save another mom from the heartbreak.
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